Adventures in Caring for My Sister- The Problem of Being The Most Caring Sibling Ever February 14, 2012
- The Ties That Bind Us Forever September 25, 2011
- Lesson from the Universe September 2, 2011
- JazzrMan
- Besse Smith December 28, 2011
- Alan and the plate of chips November 21, 2011
- Video of Alan November 4, 2011
- Future Forward 2.0
- Loving Memories of Kathy “Kat” Fialkowski February 19, 2012
- Transitions: C’est la vie January 28, 2012
- My Role Model Today: Self Advocates August 3, 2011
- Sibling Stories
- A Million Questions by Amber Nelms November 9, 2011
- The Science of Respect: A Sibling’s Perspective by Amanda Modery October 24, 2011
- The Monster Girl by Barbara E. Berger June 7, 2011
- Rachel Simon
- Forty Rules For Being On Book Tour (for The Story of Beautiful Girl) (in Wichita, mostly) February 20, 2012
- My Book Tour For The Story of Beautiful Girl: Chicago February 17, 2012
- My Book Tour For The Story of Beautiful Girl: Airport Bookstores February 16, 2012
- Sister on the Edge of Autism
- Book Review: The Way Things Look to Me December 3, 2011
- Movie Review: Loving Lampposts: Living Autistic September 22, 2011
- National autism project hosts second sibling event August 4, 2011
- My Sister’s Keeper
- A Letter to Katie December 5, 2011
- Fall Activities November 28, 2011
- Happy Dance Day October 31, 2011
- Supporting Illinois Brothers and Sisters
- Fw: Fwd: UPS for DownS Soeren Palumbo speech November 28, 2011
- The Importance of Sibling Perspectives and Experiences June 23, 2011
- Supporting Siblings of People with Disabilities August 13, 2010
- Grassroots Sibling organization news
Category Archives: Research & Surveys
Study: Many Adults With Disabilities Do Nothing All Day
A significant number of adults with developmental disabilities have no regular, daily activities, a situation that’s symptomatic of larger problems, new research indicates. The finding comes from a survey of nearly 800 siblings of adults with intellectual and developmental disabilities … Continue reading
Posted in General, Research & Surveys
Tagged Daily Activities, Disability Scoop, employment, Meaningful Life, Research
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Aging Update: Update on Intellectual Disabilities and Dementia Practices
Thought some of you might find this interesting. -John The National Task Group on Intellectual Disabilities and Dementia Practices has issued a comprehensive plan for improving the community care of adults with intellectual disabilities affected by dementia. The Group report … Continue reading
Posted in General, Research & Surveys
Tagged Aging, community, Dementia, services, white paper
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Research – Children
Hastings, R. P. and M. A. Gruszka (2003). “Behavioral adjustment of siblings of children with autism engaged in applied behavior analysis early intervention programs: the moderating role of social support Family functioning and sibling adjustment in families with a handicapped child.” … Continue reading
Sibling Caregiving Focus Groups
For those in the New England Area- Are you caring for a sibling with a developmental disability? Researchers from University of Massachusetts-Boston’s Gerontology Department and the Institute for Community Inclusion are seeking participants for focus group discussions about the issues … Continue reading
Recurrence Risk for Autism Spectrum Disorders: A Baby Siblings Research Consortium Study
Some interesting research being done on Autism and families…. “A total of 18.7% of the infants developed ASD. Infant gender and the presence of >1 older affected sibling were significant predictors of ASD outcome, and there was an almost threefold … Continue reading
Commending The Arc of the U.S. for Considering Sibling Needs
As a proud partner of The Arc of the United States, the national Sibling Leadership Network (SLN) commends The Arc for its recent survey and report which raise awareness of the needs of aging individuals with intellectual and developmental disabilities … Continue reading
Posted in General, Research & Surveys, Sibs in the News
Tagged announcements, policy, Research, SLN, surveys
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Ethnicity Impacts Sibling Experience In Special Needs Families
Cultural factors may play a significant role in defining the outcomes of siblings of those with developmental disabilities, a new study finds, affecting whether or not siblings experience anxiety, trouble with school and other challenges. In a study of 200 … Continue reading
The Arc FINDS Survey 2010
The Arc FINDS Family and Individual Needs for Disability Supports This informational survey is being conducted by The Arc, a national disability organization whose mission is to promote and protect the human rights of people with intellectual and developmental disabilities … Continue reading
